Questions for the Expert

Q: How does this disease affect everyday life?
A: Many people are affected in different ways, for me at first it hurt a lot, I had to deal with that on top of everything else, for awhile to take the weight off I used crutches. Those did not help very much so now I take medicines. No matter how severe, it takes up most of your life. From taking medicine, to limping, to dropping out of p.e., it affects many things. But to those affected learn to live with it, and if not I hope that they feel they can seek comfort in this blog.
Q: What is happening to your bones?
A: Not in many people but in a few, the blood cells attack the bone. Either by a respiratory infection or osteomyelitis, the germs travel down bloodstream to the bone. At the bone, the white blood cells attack the invader, after a long period of attacking the white blood cells hit the bone and began to leave holes. This is also known as auto-immune, or when the body attacks itself.
Q: What causes CRMO?
A: The cause is unknown , but studies have shown a possible cause is a respiratory disease or infection traveling down the blood stream.
Q: What treatments are used?
A: The object of treatments for this disease are, to control the pain, and then to reduce the inflammation. Medicines that do this are non-steroidal anti inflammatory drugs. Other devices used to control the pain by removing the weight on the bones are a wheel chair or crutches. (doctor recommendation needed)
Q: What are the symptoms of CRMO?
A: CRMO produces bone lesions (damaged areas). These areas can be symptom-free but mostly they cause pain, swelling and skin redness. The pain can be quite severe. But everyone is affected differently and some may find it very painful and some not so much. Also some cases may have more ongoing symptoms than others.
Particular bones seem to be affected by CRMO more often than others. These include the tibia (shinbone), femur (thighbone) and clavicle (collarbone).