Monday, March 31, 2008
About my topic
I am an Eighth grade student attending Albany Middle School. My fifth period teacher assigned an I-search. The object of this project was not to make a report or an essay but a search. Along this journey I have learned more about how I work and my topic. Because I am one of the people affected by my topic, I have enjoyed learning about CRMO. We had three papers for this project. They were: Interview, Book review, and Media search. Parts of my Media search are in one of my posts, titled information on my topic. There is no book on my topic because it is a very rare disease, so I had to do two interviews to make up for it. I interviewed My infectious disease doctor, and a doctor from the University of Minnesota when I was in Minnesota. My grandfather was a big help with rides to places and much more. For a final paper, the options were yours. I decided to make a blog with my good friend Hannah, and McKenzie. All the posts made were information on my topic to inform the people and complete my search. I hope you enjoy my blog!
Questions for the Expert
Q: How does this disease affect everyday life?
A: Many people are affected in different ways, for me at first it hurt a lot, I had to deal with that on top of everything else, for awhile to take the weight off I used crutches. Those did not help very much so now I take medicines. No matter how severe, it takes up most of your life. From taking medicine, to limping, to dropping out of p.e., it affects many things. But to those affected learn to live with it, and if not I hope that they feel they can seek comfort in this blog.
Q: What is happening to your bones?
A: Not in many people but in a few, the blood cells attack the bone. Either by a respiratory infection or osteomyelitis, the germs travel down bloodstream to the bone. At the bone, the white blood cells attack the invader, after a long period of attacking the white blood cells hit the bone and began to leave holes. This is also known as auto-immune, or when the body attacks itself.
Q: What causes CRMO?
A: The cause is unknown , but studies have shown a possible cause is a respiratory disease or infection traveling down the blood stream.
Q: What treatments are used?
A: The object of treatments for this disease are, to control the pain, and then to reduce the inflammation. Medicines that do this are non-steroidal anti inflammatory drugs. Other devices used to control the pain by removing the weight on the bones are a wheel chair or crutches. (doctor recommendation needed)
Q: What are the symptoms of CRMO?
A: CRMO produces bone lesions (damaged areas). These areas can be symptom-free but mostly they cause pain, swelling and skin redness. The pain can be quite severe. But everyone is affected differently and some may find it very painful and some not so much. Also some cases may have more ongoing symptoms than others.
Particular bones seem to be affected by CRMO more often than others. These include the tibia (shinbone), femur (thighbone) and clavicle (collarbone).
A: Many people are affected in different ways, for me at first it hurt a lot, I had to deal with that on top of everything else, for awhile to take the weight off I used crutches. Those did not help very much so now I take medicines. No matter how severe, it takes up most of your life. From taking medicine, to limping, to dropping out of p.e., it affects many things. But to those affected learn to live with it, and if not I hope that they feel they can seek comfort in this blog.
Q: What is happening to your bones?
A: Not in many people but in a few, the blood cells attack the bone. Either by a respiratory infection or osteomyelitis, the germs travel down bloodstream to the bone. At the bone, the white blood cells attack the invader, after a long period of attacking the white blood cells hit the bone and began to leave holes. This is also known as auto-immune, or when the body attacks itself.
Q: What causes CRMO?
A: The cause is unknown , but studies have shown a possible cause is a respiratory disease or infection traveling down the blood stream.
Q: What treatments are used?
A: The object of treatments for this disease are, to control the pain, and then to reduce the inflammation. Medicines that do this are non-steroidal anti inflammatory drugs. Other devices used to control the pain by removing the weight on the bones are a wheel chair or crutches. (doctor recommendation needed)
Q: What are the symptoms of CRMO?
A: CRMO produces bone lesions (damaged areas). These areas can be symptom-free but mostly they cause pain, swelling and skin redness. The pain can be quite severe. But everyone is affected differently and some may find it very painful and some not so much. Also some cases may have more ongoing symptoms than others.
Particular bones seem to be affected by CRMO more often than others. These include the tibia (shinbone), femur (thighbone) and clavicle (collarbone).
Glossary
Chronic-pain occurs 3-4 weeks after onset.
Onset-beginning of new recurrence or episode.
Recurrent-reoccurs; comes back.
Multifocal- shows up in numerous places.
Osteomyelitis-Inflammatory disorder of the bones.
Sub acute-occurs 2-3 weeks after onset.
Acute-occurs days after onset.
Inflammation- swelling or expansion of a joint or bone.
Biopsy-word for surgery, incision
Bone lesions- areas that show up on an MRI as infected or inflamed.
Uni focal-Only one area affected.
Clavicle-collar bone.
Prendizone-a steroidal drug used to treat pain.
Trauma- a painful event causing the brain to suffer temporarily.
Onset-beginning of new recurrence or episode.
Recurrent-reoccurs; comes back.
Multifocal- shows up in numerous places.
Osteomyelitis-Inflammatory disorder of the bones.
Sub acute-occurs 2-3 weeks after onset.
Acute-occurs days after onset.
Inflammation- swelling or expansion of a joint or bone.
Biopsy-word for surgery, incision
Bone lesions- areas that show up on an MRI as infected or inflamed.
Uni focal-Only one area affected.
Clavicle-collar bone.
Prendizone-a steroidal drug used to treat pain.
Trauma- a painful event causing the brain to suffer temporarily.
Blurb
Chronic recurrent multifocal osteomyelitis is a disease of the bone. Although it is rare, it is still serious. Affecting young children, this disease is more than painful. Please create an account on this website to get support and comment on this blog.
Word Search
Chronic recurrent multifocal osteomyelitis
K L M V L D F L J G J T S P K S N V G S C Z H P A L Z E T G
Y O F I M V Y U R U J I R S N T M T J H M O T C Z W B T R B
B D O R S B J Q Y I T F E Q N B U Q R I E U U Y R S K I F N
L C L G G C Q N F I D Y C X M L J O F K G I M F G A L D P C
A D Q F F F W M L S F L U L D U N Z W F B S I J H F E L E N
Q A B G W M Q E W Z N I R P D I L Z H D Y N W D G F N S J D
W U C M G M Y U O Y Y M R B C Z K T T B V N N X J B U M I K
S S M N D M G Q D L G A E E Z S M T I U Y W H H I E I M J V
N V S V O L G A J O X F N C D N M F I F Q Q W P P O N L T E
X X Z E D H C N K F P O T V G O K G J L O P P Z S L J A Z X
I J T J M M K A O H C Z X A V E K Q E W B C N E F J W N A R
C S L U D M I H N E D U Q H O D T P W U L Z A P A N O W S I
O S Q X J T K F W L D V X B I G R B O M F B A L P N F J H Q
U H S Z C N B C O E F J P P P R Q D L I R G N P X V F I Q H
D Z J Z R Y H D S P E F I D L W I N L O T G K D W O T U E B
H F E S N W B N I N F L A M M A T I O N G X S Z R A V L C M
O G C Q V H J V V C B R P B M U K K N R V O N S E T C V V L
E W D S G K M W F H T M I I V W L M D Y O J C K N Y F W C L
A Q H Q R L R D L P I H Q C V C U M K F Z N Q Q N I A K X Q
D I U L U K M T S E Q U D O C G W N X T P Q Y Z K F I J M H
O V T N E I T A P E I I Z G O H G L M J S D K W Q L O M X M
E U X V Z V R K A X C H J A M E O X P W Y X L W R I U X P C
V A P F J B Z V F K I Z V B M J C B D U C L A O L N E W S P
S J A F I M F K A X S W S T P Z K V F V W P T Q R L X X N C
Q Y C T U H X Y R N R M O N A S H H G T I C V N B E N J G Q
G E H T K B Q W E A T O Z C B C Y Q K K O J V B D M U I V A
O D J S Y T O G A R J I S D T D M K L D Z P Q L C F Z A X G
Q A J Z O D M F D U M P G Z Q F L N W J P K I S N S G P D J
D O O L E F V N T G L N N Z O O J Q E F Z I S X I F Q S P R
P D M X S N G W A J U G E C D W R Z V E X H G C T W F G L U
BLOG
CHRONIC
DOCTOR
FAMILY
INFLAMMATION
ISEARCH
MULTIFOCAL
ONSET
OSTEOMYELITIS
PATIENT
RECURRENT
K L M V L D F L J G J T S P K S N V G S C Z H P A L Z E T G
Y O F I M V Y U R U J I R S N T M T J H M O T C Z W B T R B
B D O R S B J Q Y I T F E Q N B U Q R I E U U Y R S K I F N
L C L G G C Q N F I D Y C X M L J O F K G I M F G A L D P C
A D Q F F F W M L S F L U L D U N Z W F B S I J H F E L E N
Q A B G W M Q E W Z N I R P D I L Z H D Y N W D G F N S J D
W U C M G M Y U O Y Y M R B C Z K T T B V N N X J B U M I K
S S M N D M G Q D L G A E E Z S M T I U Y W H H I E I M J V
N V S V O L G A J O X F N C D N M F I F Q Q W P P O N L T E
X X Z E D H C N K F P O T V G O K G J L O P P Z S L J A Z X
I J T J M M K A O H C Z X A V E K Q E W B C N E F J W N A R
C S L U D M I H N E D U Q H O D T P W U L Z A P A N O W S I
O S Q X J T K F W L D V X B I G R B O M F B A L P N F J H Q
U H S Z C N B C O E F J P P P R Q D L I R G N P X V F I Q H
D Z J Z R Y H D S P E F I D L W I N L O T G K D W O T U E B
H F E S N W B N I N F L A M M A T I O N G X S Z R A V L C M
O G C Q V H J V V C B R P B M U K K N R V O N S E T C V V L
E W D S G K M W F H T M I I V W L M D Y O J C K N Y F W C L
A Q H Q R L R D L P I H Q C V C U M K F Z N Q Q N I A K X Q
D I U L U K M T S E Q U D O C G W N X T P Q Y Z K F I J M H
O V T N E I T A P E I I Z G O H G L M J S D K W Q L O M X M
E U X V Z V R K A X C H J A M E O X P W Y X L W R I U X P C
V A P F J B Z V F K I Z V B M J C B D U C L A O L N E W S P
S J A F I M F K A X S W S T P Z K V F V W P T Q R L X X N C
Q Y C T U H X Y R N R M O N A S H H G T I C V N B E N J G Q
G E H T K B Q W E A T O Z C B C Y Q K K O J V B D M U I V A
O D J S Y T O G A R J I S D T D M K L D Z P Q L C F Z A X G
Q A J Z O D M F D U M P G Z Q F L N W J P K I S N S G P D J
D O O L E F V N T G L N N Z O O J Q E F Z I S X I F Q S P R
P D M X S N G W A J U G E C D W R Z V E X H G C T W F G L U
BLOG
CHRONIC
DOCTOR
FAMILY
INFLAMMATION
ISEARCH
MULTIFOCAL
ONSET
OSTEOMYELITIS
PATIENT
RECURRENT
Bibliography
children first. 27 Feb. 2008 http://www.childrenfirst.nhs.uk/teens/health/conditions/c/
crmo.html.
CRMO. 27 Feb. 2008 http://acronyms.thefreedictionary.com/CRMO.
crmo. 27 Feb. 2008 http://radiology.rsnajnls.org/cgi/content/abstract/166/2/493.
"CRMO facts." institue of children health . 31 Jan. 2008. 31 Jan. 2008 http://http://
www.ich.ucl.ac.uk/factsheets/families/F050097/index.html#causes. diagnoses and facts on
CRMO
Girschick, H J. "chronic nonbacterial osteomyelitis in children." ARD online. 7 Jan. 2007. ard
online. 7 Jan. 2007 http://ard.bmj.com. german guys website. % of places most likely
affected.
health boards. 27 Feb. 2008 http://healthboards.com.
journals. 27 Feb. 2008 http://www.journals.uchicago.edu/doi/pdf/10.1086/427217.
Library, Ann. "article from the medical library at univrsty of minnestoa." pediatric hospital
medicine chapter on osteo. CRMO ed. 2007. info from article in minnesota.
orpha.net. 27 Feb. 2008 http://www.orpha.net/data/patho/GB/uk-CRMO.pdf.
Quie, Paul G. Personal interview. 20 Feb. 2007. regents profesor at university of mn.
crmo.html.
CRMO. 27 Feb. 2008 http://acronyms.thefreedictionary.com/CRMO.
crmo. 27 Feb. 2008 http://radiology.rsnajnls.org/cgi/content/abstract/166/2/493.
"CRMO facts." institue of children health . 31 Jan. 2008. 31 Jan. 2008 http://http://
www.ich.ucl.ac.uk/factsheets/families/F050097/index.html#causes. diagnoses and facts on
CRMO
Girschick, H J. "chronic nonbacterial osteomyelitis in children." ARD online. 7 Jan. 2007. ard
online. 7 Jan. 2007 http://ard.bmj.com. german guys website. % of places most likely
affected.
health boards. 27 Feb. 2008 http://healthboards.com.
journals. 27 Feb. 2008 http://www.journals.uchicago.edu/doi/pdf/10.1086/427217.
Library, Ann. "article from the medical library at univrsty of minnestoa." pediatric hospital
medicine chapter on osteo. CRMO ed. 2007. info from article in minnesota.
orpha.net. 27 Feb. 2008 http://www.orpha.net/data/patho/GB/uk-CRMO.pdf.
Quie, Paul G. Personal interview. 20 Feb. 2007. regents profesor at university of mn.
Conclusion
To conclude this blog and my entire project, I would like to leave you with a little bit of information. I hope that by now you understand that not all diseases are common, but still important. I am not a doctor, the information that is listed is only what I found from my search. If you are worried that you may have this disease please do not jump to conclusions before seeing a doctor. I hope that you can find a shelter form the rain in this one small support site. The objective was not to help all but to inform others of the need for support groups for diseases. This disease is just one of many, and should not be treated differently. Every disease, common or not deserves a support.
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